I've also heard success stories from other bloggers who have had the cochlear implant surgery and would do it again, it has been that good of an experience for them. A friend here in town who reads my blog reached out to her relative and got information for me on another implant, and so I'll do research on that. Some of you have suffered hearing loss too, and we've laughed together over the daily annoyances that make up the life of a hearing impaired person... You HAVE to laugh, really.
Example: Just yesterday I went grocery shopping. I got into a long line to check out, and apparently the one next to me opened up and the store clerk was calling me to come on over to her line. I didn't hear her. She then began waving her arms REAL BIG and I saw the waving and looked over... she pointed to her empty line exasperatedly, but by the time I saw her waving, others had too and jumped in.
Sometimes the check out person or a restaurant worker or a gas station attendant or the mail delivery person joke around with me in casual banter that you all are used to. It's a part of everyday interaction. A word of advice that you didn't ask for.... ENJOY those little interactions.. they warm your world, believe me. I can only hope my responses are appropriate, because most of the time I can't hear it and I'm winging it. Sometimes... the reaction from the other party is one of a silent, odd look... and I know I got it wrong.
Restaurants are a nightmare, as are any social functions where there is any background noise whatsoever... meaning any social function whatsoever. I don't join friends for a drink or a social outing anymore because I won't hear the conversation, and I don't want people I care about to have to repeat themselves over and over. It's easier to just stay home. At the Dog Days events, I no longer work the adoptions table because with all the barking dogs and crowds of potential adopters, I cannot hear the interview I'm supposed to be giving.
Jane, a blogging friend of mine, knows my woe. She said this after my post.. and I laughed out loud. THIS is what I want for Christmas... "I think we should get T shirts that say DEAF on the front and DEAFER on the back!!
I want to thank each one of you for commenting kindly on that post, for sending vital information that I did not have before, for commiserating, for the camaraderie, for being there. I had no idea when I started blogging, what an important community it would turn out to be. Thank you, thank you - I feel as if a shroud has been lifted. Ok, maybe it's still stuffed in my ears, but I'm no longer blind to the opportunities. I have resources.
All I have this morning, for you, is a big smile. I'm happy you're making the connections you need.
ReplyDeleteHow awesome that you found good resources and also good feedback on the surgery! Sounds like a fresh start to me :-)
ReplyDeleteBless your little pea pickin' heart. It just goes to show you we never know what someone is going through until you walk a mile in their moccasins.
ReplyDeleteI love the ideal of the T-Shirt. Many days I need one of those. It's not that I can't hear, I just don't comprehend I guess.
Hope you find some help girlfriend!
that is awesome. so glad folks knew of directions to point you in for more info and personal testimony, too.
ReplyDeleteThere's a LOT of stuff we wouldn't have with our blogs! Thankful that you have resources (and the peace that this brings) ... mostly thankful to have YOU.
ReplyDeleteBless your sweet heart. I am so glad that there are blogging friends who could help you! You are awesome Karen!
ReplyDeleteSo glad you found resources you didn't know were out there. Thank goodness for the blogging world :)
ReplyDeletexo
-Joan-
www.mvobsession.com
What you wrote about waiting in line and not hearing what they say, that's me.
ReplyDeleteI can hear most things if I am looking at them. I can figure out what they were saying from life experience.
I only have a bit of hearing loss so I can only imagine what you go through.
I do hope the new group you found will give you information and a possible sort of fix.
xo,
JC
I am glad that you have gotten new resources! I am sorry that your experience with the professionals has been so frustrating up to now. Have a great day!
ReplyDeleteWhen you were talking about going out to restaurants I flashed back to a frequent occurrence with my Dad.
ReplyDeleteHe would struggle to hear the conversation at the table but he would say every damn time someone in the kitchen dropped the silverware bin or cursed at a mistake.."THAT I can hear! or when a clerk would approach my dad on his deaf /blind side they would stand there saying "Sir - Excuse me?" dozens of times before touching him and then he would jump and scare the crap out of both of them!!! yeah keep laughing and learning <3
I missed that post and will go back and read it. But let me say how brave you are and how much I'm pulling for you, my friend.
ReplyDeletexo
Claudia
Bloggers are such a wonderful group of people. (and I'm so glad you have been a huge part of my blogging friendships) I hope the post and the new connection to HLAA will open doors you never dreamed were even out there!
ReplyDeleteWell, you may not hear but you sure LOOK good! You are a beautiful woman, Karen.
ReplyDeleteBloggers ARE the best and I say- go for it- on that T-Shirt! lol Better than Dumb and Dumber! xo Diana
Well, Karen, I've come late to your story, but can commisserate. I had a hearing consult recently that confirmed what I had been told ten years ago... that I have significant hearing loss. I miss so much of what is said on television, my husband repeats himself constantly, and I too find myself nodding in conversation, hoping I am getting it right. Hearing aids are out of the question... not just very expensive, but delicate enough that farm chores could easily ruin them. I am learning to live with it, even as it worsens. I wish you the best of luck in your journey!
ReplyDeleteI had to go and catch up. I grew up with my Dad having complete loss in one ear and partial hearing in the other. He really got so he would bend his ear and turn his head, or shake his head no and then move his body- he could also read lips. And we all adjusted for him and it just seemed we learned how to cope with it over time. I pray you find those measures of coping and help from the associations! I always say we all have our burdens to carry- and yes- the blog communities we grow become like family to us! Hugs to you!
ReplyDeleteyup, throughout the last two years of a daily headache, and three surgeries and their recoveries, my blogging friends have been there, faithful and encouraging. I can't imagine how it would have been without all of them (that includes YOU)
ReplyDeleteGiving you a high five. Good luck going over all the information, but now you have the tools and resources to make the right decision for you. Aren't blogger friends wonderful?
ReplyDeletehugs...
I am sooo not surprised the blogging community is where you found some answers. Happy for you Karen, I'm sure the group you end up belonging to will be a wealth of help. Now I have to go catch up on some posts as I've been absent from here for a while. Supporting you in thoughts tonight.
ReplyDeleteYou are one amazing woman. I just wanted to tell you that!
ReplyDeleteAnother good post, Karen...I am definitely going to check out that organization. Thanks for doing the legwork and passing it on.
ReplyDeleteI so had to relate to the funny things I respond with. And you reminded me of a time I was in line at the post office. I was just coming back from an appointment to get my heating aids cleaned and tuned up ironically. While I was in the line at the PO, apparently the woman behind the counter was trying to get my attention that I had dropped something. As in your case, others in line joined in until I noticed everyone yelling and AT ME and pointing to the floor where I had dropped a slip of paper. I picked it up looked at it and then said loud enough for everyone to hear, "It's the receipt for my hearing aids!!" And with that everyone laughed! Too weird and too funny!
Hey...woe is us, we have to put up with all these clueless people!
XO,
Jane
Your one heck of a person k !
ReplyDeleteKaren, I am so sorry this is happening to you, but you have tackled it like the lady you are and it will not overpower you. I know it is frustrating to have an illness that no one sees and often people misunderstand what you are going through because it doesn't "show". I know as I suffer from chronic pain that no one sees. Keep you head up high and all of your options open. And don't let it get the best of you.
ReplyDeleteBig hugs,
Sam
Oh Karen, I'm sorry to hear of this. I have often wondered why professionals in their respective fields don't seem to be aware of, or are just selfish with sharing informational resources that are so greatly appreciated. We gain strength through speaking with others who share our experiences. Something my sweet momma always used to tell me about life's ailments..."we all have our crosses to bear, and everyone's is different, but nobody gets out for free". Hang in there my friend!
ReplyDeleteOh the support - and community - it's what we need.
ReplyDeleteYou are a beauty.
wishing you peace this afternoon.
I never thought about how socially isolating hearing loss could be for someone! I'm not surprised at all though that medical professionals did not direct you to organizations who could provide you with information and support. Oh, I know they are busy and see lots of patients BUT they could have their office personnel make up information folders to give to patients with vital information and support regarding their disabling condition! This is such a great way to keep up on the latest treatments for hearing loss and I know that advancements are being researched all the time. Hope you find something that helps--and your just speaking out on it will help others! The blogging neighborhood has become a powerful force!
ReplyDeleteV
V
I'm so far behind in reading, BUT happy many have been able to offer good advice and give my birthday buddy HOPE!
ReplyDeleteYou know I wish the best for you always.
Xoxo
I must have missed that post...hearing loss can be so devastating. And isolating. I've watched my Mom become more and more isolated because of hearing loss and a brother as well who used to play the cello and can't anymore. I agree about the blog world. Such a source of support and caring and information! Hugs!
ReplyDeleteYou are an inspiration. I know with your will power and the way you advocate for others, if you will only do so for yourself - anything is possible! Many blessings, Tia
ReplyDeleteYou made me laugh when I read about the simple banter w/strangers. I remember being out Christmas shopping with my sister, a sales person was talking to me, I did not hear her, so she thought I was ignoring her and called me a bitch. I did not hear that either but my sister did, we had a good laugh, it happens more than I would like. I also know how true it is the blank stares when the conversation did not go as expected. I have warned friends, coworkers and family, I do tend to smile and nod if I do not hear what they really said. I get tired of asking someone to repeat, and they tend to get pissed repeating 3 or 4 times. I also tell people what I really heard, most of the time it makes no sense, I tend to not hear the high and low pitches of words. I read about the Hearing Loss Association of America and I am going to look into it. It would make me feel better to surround myself with people who understand and feel the way I do. Alaina
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